Do you know a patient with NGLY1 deficiency?
Do you think you know a patient with NGLY1 deficiency?
Or, are you a researcher interested in contributing to the science?
Are you seeking more information on NGLY1 deficiency?
Please contact us: firstname.lastname@example.org
Our other resources include CDG CARE, another within the glyco family looking to offer support for families, share research and raise funds for rare glyco diseases.
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