NGLY1.org + CDG CARE.

The NGLY1 Foundation | NGLY1.org is excited to announce our union with CDG CARE! CDG CARE is a 501(c)(3) nonprofit public charity that represents all Congenital Disorders of Glycosylation–of which N-glycanase deficiency (NGLY1) is considered a part. NGLY1.org has closely and successfully collaborated with CDG CARE for the past 6 years. There are currently 150 different types of Congenital Disorders of Glycosylation (CDGs) with very few numbers of patients each. However, collectively the number of patients affected by CDGs is significant and growing. By folding NGLY1.org into the portfolio of CDGs stewarded by CDG CARE, we will be leveraging economies of scale in order to do more in terms of research, awareness and support for the NGLY1 community as well as the greater CDG community. We believe that we are STRONGER TOGETHER. Any future contributions for NGLY1 research and/or support should be made out to CDG CARE with a note in the memo to designate those funds for NGLY1. We are hopeful that this is another big step toward treatments and cures for all!

Amazing things can happen when we join together
 

Treatments and cures are Positively Possible®.

Make a difference in our children's lives today.

 

What is NGLY1?

Learn more about this rare genetic disorder.

 

Hear our stories.

Visit our blog for the latest news, scientific developments, and personal stories related to NGLY1.

Our Vision

Educate clinicians, researchers, and the public on NGLY1 deficiency.
Identify NGLY1 patients and foster a supportive community.
Fund the science to understand, treat and cure NGLY1 deficiency.