NGLY1.org became a member of the National Organization for Rare Disorders (NORD) in March 2016. NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations...
The 2016 CDG Family Conference was organized in collaboration with CDG CARE and the Sanford Burnham Prebys (SBP) Medical Discovery Institute. The conference was held February 27-29th in Del Mar, CA....
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