NGLY1.org became a member of the National Organization for Rare Disorders (NORD) in March 2016. NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations...
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The 2016 CDG Family Conference was organized in collaboration with CDG CARE and the Sanford Burnham Prebys (SBP) Medical Discovery Institute. The conference was held February 27-29th in Del Mar, CA....
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