Watch LIVE as the National Organization for Rare Disorders (NORD) honors the people, organizations, and innovators at their 2017 Rare Impact Awards on May 18 in Washington, D.C. (View livestream here...
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Join the Mark2CureAThon on May 11/12 to search for clues on a rare disease by identifying genes, diseases, drugs, and the relationships between these based on literature surrounding the NGLY1. ...
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Our advocacy team will be participating in the upcoming BIO International Convention in San Diego next month! We are excited to learn about the latest innovative technologies and introduce our…
We are excited for Noah as he takes his next "Run for Rare" across Europe. The awareness he has brought for children with rare diseases is awe-inspiring. The 33-year-old will...
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