The NGLY1 Foundation (NGLY1.org) is pleased to announce the appointment of Carrie Ostrea as Executive Director as of July 1, 2017. “Bringing Carrie in to lead the team represents a...
Can you share a bit of your background? I am a second generation Taiwanese American, born and raised in rural south Texas. Life was an interesting merger of enrooting industrial...
The 2nd Annual Congenital Disorders of Glycosylation (CDG) Patient, Parent, Physician meeting took place in New Orleans in May 9-10, 2017. Amour Fund along with Dr. Morava at Tulane University...
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