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Blog

Jun 28
0

Announcing Our New Executive Director

By NGLY1.org | NGLY1.org | One Comment
The NGLY1 Foundation (NGLY1.org) is pleased to announce the appointment of Carrie Ostrea as Executive Director as of July 1, 2017. “Bringing Carrie in to lead the team represents a...
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Jun 15
0

Interview with Victor Lin, NGLY1 Researcher

By admin | Researchers and Clinicians | No Comments
Can you share a bit of your background?​ I am a second generation Taiwanese American, born and raised in rural south Texas.  Life was an interesting merger of enrooting industrial...
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Jun 07
0

2nd Annual CDG Patient, Parent, Physician meeting

By NGLY1.org | CDG, Events | No Comments
The 2nd Annual Congenital Disorders of Glycosylation (CDG) Patient, Parent, Physician meeting took place in New Orleans in May 9-10, 2017. Amour Fund along with Dr. Morava at Tulane University...
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Recent Posts

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Recent Comments

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  • Kimberly Palma-Ortega on Announcing Our New Executive Director
  • Misak Zetilyan on President Obama congratulates the NGLY1 community

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