The 2nd Annual Congenital Disorders of Glycosylation (CDG) Patient, Parent, Physician meeting took place in New Orleans in May 9-10, 2017.
Amour Fund along with Dr. Morava at Tulane University organized the event. The purpose of this meeting was to get the families together to share experiences and to learn what is the latest in CDG research and treatment options.
A total of 14 CDG families participated in the event. Presentation topics covered an introduction to CDG, new treatment options, natural history study, physical therapy, and nutritional supplements. The event was concluded with a panel discussion and a clinical visits the following day with the clinical staff.