The mission of the NGLY1 Foundation is to eliminate the challenges of N-glycanase Deficiency through research, awareness and support.
Who are we?
NGLY1.org is a 501(c)(3) nonprofit corporation. NGLY1.org has served as a public resource web site on N-glycanase deficiency for researchers, clinicians, patients and their families since September 2012.
The NGLY1 Foundation (doing business as NGLY1.org) was formed as a Utah nonprofit corporation on October 1st, 2014 for scientific, educational and charitable purposes. Currently, the organization is based in Salt Lake City, Utah and serves scientists, clinicians, and families.