Cristina Casanova Might, MBA
Cristina Casanova Might’s oldest son, Bertrand, was the first patient diagnosed with NGLY1 Deficiency. In September 2012, shortly after the discovery of the 2nd and 3rd patients with N-glycanase deficiency, she started NGLY1.org as a means of building the nascent NGLY1 community. Cristina is passionate about bringing technology and community together. She believes that partnership between patients, families, researchers and clinicians is essential to accelerate science—understanding, treatments and cures. She brings her background as a former tech CEO to run the day-to-day operations of NGLY1.org. Cristina holds a BS in Industrial Design and an MBA in Finance and Accounting from Georgia Tech. She blogs at overcomingmovementdisorder.com and tweets from @bertrandmight.