Cristina Might, President of NGLY1.org, spoke on Capitol Hill this week at the Rare Disease Congressional Congress Briefing. Her presentation focused on genetic testing and sequencing for rare diseases. The Congressional Rare Disease...
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Cristina Might, Founder and Executive Director of NGLY1.org, shared her story and perspective at the recent Federation of American Societies for Experimental Biology (FASEB) at a Capitol Hill briefing this month in…
Cristina Might, executive director of NGLY1.org and mom to the first NGLY1 patient, and Jennifer Leftwich, mom to Gage, participated in rare disease events this week in Washington, D.C., in…
NGLY1.org founder and Executive Director Cristina Might was honored to present the Honorable Senator Orrin Hatch (R-UT) with the 2016 Rare Voice Lifetime Achievement Award. Hosted by Rare Disease Legislative...
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NGLY1.org became a member of the National Organization for Rare Disorders (NORD) in March 2016. NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations...
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On Tuesday, July 22, 2014, at 3:00 p.m. in 2322 Rayburn House Office Building, the Subcommittee on Health held a hearing entitled “21st Century Cures: Examining Barriers to Ongoing Evidence…
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