Peter Lorentzen, PhD

Peter Lorentzen is an Assistant Professor in the Travers Department of Political Science at Berkeley, where his research is on the political economy of developing countries and authoritarianism, with a focus on China. He is a father to three boys, one of whom has complex special needs and is on a journey to change his status from “undiagnosed” to “diagnosed.” Peter has a Ph.D. in Economics (Stanford Graduate School of Business), M.A. in Economics (Stanford University), M.A. in Political Science (Stanford University) and B.A. in Asian Studies (Dartmouth College).

Glenda McCoy

Glenda McCoy entered the rare disease world in 2013 when her (then) two-year old daughter, Katherine Belle, was incorrectly diagnosed by different doctors with a the same rare and progressive metabolic disease. Exhaustive testing and insurance battles ensued until February 2015 when Whole Exome Sequencing (WES) revealed their daughter’s accurate diagnosis – Mitochondrial Complex 1 (NUBPL).  A proponent of WES, Glenda is a loud and steady voice in the rare disease world through her active social media accounts and blog, Hope for Katherine Belle. Her daughter’s story was featured in the New York Times blog, Motherlode. Prior to staying home full-time with Katherine, Glenda worked for the Governor’s Office (Commonwealth of Kentucky). She attended the University of Kentucky, where she received a Bachelor’s in English and a Master’s in International Relations from the Patterson School of Diplomacy and International Commerce. In addition to her blog, Hope for Katherine Belle, Glenda is a contributing writer and photographer for the regional blog, HerKentucky.

Karen Park

Karen Park is a Principal at Bernstein Private Wealth Management and a mother to three boys. Her middle son has complex special needs and is on a journey to change his status from “undiagnosed” to “diagnosed.”  Karen joined Bernstein in 2004 and is based in the firm’s San Francisco office. She advises high-net-worth families regarding their investment plans, wealth transfer goals and related issues. Prior to joining Bernstein, Karen was a vice president with Morgan Stanley’s technology investment banking team and a financial analyst with CS First Boston. She earned a BA, magna cum laude, in Social Studies from Harvard College in 1993 and an MBA from Harvard Business School in 1997.

Carrie Ostrea

Carrie Ostrea is the co-founder and Executive Director of the Little Miss Hannah Foundation, a 501(c)(3) nonprofit organization that focuses on enhancing the quality of life for children diagnosed with rare and life-limiting conditions in Southern Nevada. The foundation was created in memory of her 3-year-old daughter, Hannah, who passed away from an ultra-rare genetic condition in 2011.  Currently, she is the principal in Ostrea Consulting LLC, a rare disease advocacy strategic consultancy working with nonprofit and industry organizations in the rare disease space by connecting advocates to available resources, organizing patient meetings, and bridging the gap between advocates and the bio/pharma industries.