Carrie Ostrea,’s Executive Director, participated in the inaugural National Center for Advancing Translational Sciences (NCATS) Advocacy Day on June 30, 2017, learning about their resources and programs and how they can help our #NGLY1 and #raredisease communities.

This was a fantastic opportunity to explore the amazing programs NCATS has available to the NGLY1 community.  We look forward to collaborating with NCATS in the future as the work they are doing in Translational Science is ground-breaking and holds real hope for our NGLY1 and rare disease communities.

Dozens of rare disease organization leaders were in attendance, and this event provided a wonderful chance to network and learn more about how other research organizations plan to utilize NCATS programs.