NGLY1.org founder and Executive Director Cristina Might was honored to present the Honorable Senator Orrin Hatch (R-UT) with the 2016 Rare Voice Lifetime Achievement Award. Hosted by Rare Disease Legislative Advocates, a program run by the EveryLife Foundation for Rare Diseases, the annual award ceremony in Washington, D.C., pays tribute to rare disease advocates from government, science, medicine and the patient community.